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My Second Infusion | A Life Update 

If you haven’t read my first post about this, you should probably check it out. 

As a follow up, this time went SO much better. My nurse was my best friends mom, and she is GOOD at what she does. My body was also more cooperative. Nothing went wrong or even slightly funny, it was the ideal experience. An infusion, burger, and trip to the art store later and I’m set to resume life! Which is exciting because symptoms that were taken away with the last infusion started to come back on Wednesday and really came back yesterday. Sigh. Buh-bye symptoms! See you in two weeks probably! 

I love scientists and modern medicine!

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Senility | Thoughts

I currently live at home with my parents, we all live with my grandfather to take care of him. Recently his mental state has been dependent on his health. He’s got a P.hD in the Classics, but as his health deteriorates…

Today I overheard my dad talking to my grandpa (since the g-pa is almost deaf, it’s very easy to over hear the yelled conversations) “Whatcha got there?” My dad yells at about 11:00 am (grandpas breakfast time), “…. those are dog treats.”

“Wha?” deaf dude says.

“Dog. Treats. Look,” he picks up and points at the package, ” ‘Because your best friend deserves nature’s best ingredients!’ …. Would you like me to make you something!” 

A grilled cheese and cup of coffee later and the old guy is taken care of. I just… sigh. 

Life is interesting. 

Be grateful for your caretakers and mental health. 

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A Rant About My Cat

When I was four years old I got a cat for my birthday. Almost 15 years later and I’ve still got him! I’ll blog about the birthday event later because I was pretty funny as a four year old, but right now I need to get this off my chest. 

As I said, 15 years. I’ve had my cat, Stanley, for FIFTEEN YEARS. They’ve been good and solid! But now he officially qualifies as an old cat. An obnoxious old cat. In his old age he has actually become a lot more relaxed, less territorial (stopped pissing on everything). However, he has also developed much more of a voice. He meows. He doesn’t just meow, he howls, and screams, and harasses me! When he wants food, he meows. When he has food but wants the better food, he howls. When he has the better food, but it got cold or pushed around, he keeps howling. When his water dish is a little dirty, he meows. When his litter box is dirty, he meows. When literally nothing is wrong, he meows. Sometimes holding him on my lap will quiet him down for a bit, but if I have to get up, he complains. 

He’s also figured out how to use his paws to get my attention. For instance, when I go to the bathroom, he wants to sit on my lap. He communicates this by sitting next to the toilet and lightly batting at my leg. With his claws out. Gently, no scratch marks left ever, but it’s annoying as all hell. 

I love my cat, but never did I think I would scream “shut up” at an animal alone in my room. 

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Suicide Squad | Movie Summary

SPOILER ALERT!!!! You have been warned.

Here’s a sloppy but hopefully thorough summary of what went down in Suicide Squad. Whether you haven’t seen it or are just a bit rusty, here goes…. :

Superman is dead. The world needs a new villain-management plan.  Amanda Waller (an intelligence officer and all around boss-ass-bitch) creates the mighty “task force X” which is basically a group of criminals that each have supernatural powers. Colonel Rick Flag (who is a normal human) is put in charge of them and basically can only control them because each of the criminals has a nano bomb implanted in their necks that he has the detonate button to.

A member of task force X is Rick’s girlfriend… a sweet little archaeologist that has been possessed by a witch/goddess/scary being that goes by the name “Enchantress”. Amanda thinks she has control over the all-powerful being because she has her heart in a briefcase that she can stab whenever the Enchantress misbehaves. This of course doesn’t hold up and the Enchantress summons tons of crazy monsters and contacts her brother for strength and help. This all goes down in a subway and Amanda has to call on her new task force (which she has left uninformed as to what they’re even fighting.)(The whole thing is passed off as a terrorist attack.)(It’s very clearly not a terrorist attack.)

Harley Quinn and the Joker are a thing that exist still (Since this IS the batman universe, after all) so the Joker manipulates his way into the prison to get Harley’s nano bomb deactivated. One of the task force members tries to escape and is killed by the bomb (he thought the bombs were fake). The rest of the squad is attacked by Enchantress’ monster minions.

After making it to a safe room, the squad meets up with Amanda Waller and escorts her to the rooftop “for extraction”. The Joker has taken over the incoming helicopter, however and takes Harley away. Amanda orders Deadshot (one of the task force members who never misses a shot) to shoot Harley (who is swinging from a rope off of the helicopter) since her bomb was deactivated. Deadshot “misses” and we get some character development. Woohoo. The helicopter is shot down anyways and Harley rejoins the squad because she thinks the Joker is dead (very sad moment, of course). Monster minions kidnap Amanda. Deadshot finds files and learns about Enchantress. Rick has to tell the truth. Squad members abandon him. Rick decides to call of the mission but continue anyways. Presumed evil villains jump at the chance to prove that they’re not evil and rejoin to save Amanda. Other task force members special powers finally come into play, putting to use the mutant crocodile-human and the literal devil who makes fire. I know, if you haven’t seen the movie, it sounds weird. The devil assumes his true form and there’s a pretty cool fight between Gods to distract the super powerful brother of the Enchantress.

Squad fights Enchantress. Squad fails. Enchantress is playing with their minds, but they’re smarter than that. Harley pretends to buy into the Enchantress’ BS in order to get close enough to kill her. Rick ends up being the one that has to  crush the Enchantress’ heart, because conflict. June (the archaeologist girlfriend) is freed from Enchantress’ curse. Amanda is also saved and gives each criminal ten years off their sentences as well as special privileges (aside from one of them who misbehaved). Also the Joker is still alive and comes to Harley’s rescue back at the prison. The after-credits scene is Amanda meeting with Batman who will now act as her bodyguard as long as he gets access to the ever-growing file of super-humans (cliff hanger possibilities, oh no!)

 

The end.

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My First Infusion Experience | My IBD Diary

Warning: This post will contain medical content- lots of needle talk!

Disclaimer: This is just my personal experience. It is different for everyone.

My Infusion Experience

With that out of the way, I’m going to talk about my first infusion treatment for my severe ulcerative colitis. I was only recently diagnosed, the “severe” part of the diagnosis is what got me to this stage of treatment faster. I’m only 18 and still babied, so my mom was with me the whole time as she normally is to deal with all the technical details.

First, I was sat in a room. Kind of small, but there was a tv and a giant comfy chair (for me) and a side chair (for le mama). The nurse introduced himself, asked questions about the sheet I filled out in the lobby (recent symptoms type thing) and reviewed which medications I would be given. There was a mess up at the pharmacy and apparently none of the major medications I was there for were prescribed and ordered. This was taken care of as fast as possible, which meant sitting and hanging out for 45 minutes while we waited for the medications to arrive.

Blood Work

I had to have my blood taken for labs (this will happen each time before the infusion to monitor my healing) and this was by far the most stressful part. I was given medicine in pill form first- tylenol, benadryl, and an anti-anxiety med (which didn’t work) to get them in my system in case I have a negative/allergic reaction to the infusion. Being a needle-phobe, I don’t want to see the needles. I’ve come to terms with that fact that I’ll have to be in contact with them a lot, but I still need to take anti-anxiety medication and hide my head in my mom’s chest. Not going to lie, this was the worst blood draw ever. I’m typing this quickly to get it over with, so pardon bad phrasing. It hurt. The idea was to stick me one time, use that as the port to draw blood and then do the infusion. Only problem is, I’ve lost a ton of weight and I’m also very low iron. This means that my veins don’t cooperate. The needle for the infusion also hurts a fuck ton more than the normal ones. Excuse my language. I could feel it. And I mean FEEL it. After several attempts and really really unpleasant never-before-felt digging (shudder) they called a specialist down for the blood draw. While she was on her way, I requested something- anything- for my arm with the infusion needle in it. I was then given a warm blanket to wrap it in which did help, but also got it out of my sight.  The blood work specialist was fantastic, got it in one go. I told her I loved her.

There was still a needle in my other arm from the male nurses work because it was a good spot of the infusion, it just wasn’t giving any blood. It was unpleasant and I could feel it there the whole time. This was difficult, but I got through it with some meditation and nervous chatter with my mom.

After all of that, it was easy sailing. The nurse hooked my arm up to the iv drip, told me to tell him if any negative signs that he listed off occurred, explained how it was going to work.

During the Infusion and After

I watched an episode of Sherlock on Netflix with my mom while the infusion was actually happening… an hour and a half later, I was done. A different nurse/lady/assistant person came in and disconnected me. The spot where the needle was hurt a lot- really bad bruise kind of pain, and I was tired. The lobby was empty, hardly any nurses were around when we left.

We went out for burgers and then went home. Here’s the incredible part- only my arm hurt. This is so unbelievable because for the past few weeks, my colon had been in pain. On a scale of one to ten, it was consistently at LEAST a seven. I felt like dancing. I had forgotten what no-pain felt like. Not only that, but my appetite was back after being gone for a week. I was just a bit tired like I had had a long day at school and maybe not enough sleep, but WOW was that a pleasant kind of tiredness to feel.

The day after, I could feel my colon and feel it trying to start healing, but some of the extra medications they had given me to prevent allergic reactions were still in my system and working for the better- I felt incredible.

The next day (two days after) I started out feeling pretty good, but then the extra anti-inflammatories wore off and my body started trying really, really hard to heal. My pain was still significantly less than before the infusion, but it was there. I was also exhausted. All my energy was going to healing- this meant multiple naps. Not too bad.

More updates to come, I hope this was informative to those who needed it. Leave any questions in the comments!

Thanks for reading,

Q

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Dancing For Two Design | A Maternity Shirt

Dancing for Two Quirky quinn pascal

Sitting on the side of a dance class I go to, watching one of the participants (who is currently 29+ weeks pregnant) inspired me to make this design! “Dancing for two” is my play on the typical ‘eating for two’ that’s commonly associated with… well, people carrying another person in them!

Dancing for Two Quirky quinn pascal
Dancing for Two